Friday, October 14, 2016

Day 2556 - Why Did My Hair Fall Out?

Have you heard of Alopecia Areata?


Alopecia Areata sounds incredibly fancy and one could easily think you might find it on an Italian menu.  

As delightful as it might sound, it's not a pasta dish served alongside Penne Arrabiata, but rather an autoimmune disease that causes hair to fall out in small, random patches.

Alopecia Areata, also known as spot baldness, affects hair follicles which are part of the skin from which hairs grow.  The damage to the follicle is usually not permanent and the hair can grow back in time. Needless to say the idea of having patchy hair can be quite confronting.  

There is no cure for this disease. 

A young man by the name of Joshua Rooks came to me recently and asked if I might edit his book.  You might recall I wrote about that here.

Joshie is 8 years old and has recently been diagnosed with Alopecia Areata and in order to help deal with his diagnosis he has written a book to not only keep himself feeling positive but to also explain the disease to others.

What an amazing accomplishment for this 8 year old boy.
He has teamed up with one of his school teachers who happens to be a talented illustrator to bring his words to life.

Combine all that with a local Canberra printer who donated his time and resources for the first print run and Josh is now an author.  

Today Joshie presented me with my very own signed copy of "Why Did My Hair Fall Out?"

Two authors celebrating the release of Joshie's first book.
It's a delightful book telling his story, his way.  

"Why Did My Hair Fall Out?" is currently only available in the ACT and can be acquired via donation to Joshie's hat fund.  

It's such a great resource for children who may be facing a similar diagnosis. In time Joshie's book may well be available for wider distribution.

If you know a child who has Alopecia Areata and think this book might help them on their journey, feel free to email me at leanne at leanne shea langdown dot com or leave your details in the comments below and we'll get Joshie's team to contact you.  

Well done Josh! Thanks so much for sharing your story.

Have you heard of Alopecia Areata?

Do you know any child authors?

How cool is this kid?



7 comments :

  1. So very cool! My cousin and a friend both have Alopecia that manifested in their late teens and it's something that I guess we don't really think about because they wear wigs and glue on eyebrows etc. It's so great that Josh was proactive and wrote about it for other kids. :)

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  2. Great work Josh.My boy Riley has had Alopecia for the last 6 years.Its awesome you are getting the word out. Its one of lifes mysteries.But talking about it is so important.

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  3. Oh my gosh! Joshie is super rad! Good on him.

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  4. Thankyou all for your kind comments. I will let Josh know. He is super impressed with himself right now ��

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  5. Please tell Josh that he is amazing. I haven't heard of this condition and his book and this post has raised my awareness. Top kid! #PoCoLo

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  6. Hi Leanne, I have heard of Alopecia, but know very little about the condition. It must be hard to live with whatever your age. And Joshua is not only a very cool boy, but quite inspirational too. I personally don't know another living child authour, so that makes him one in million (not that I know a million people!).

    #PoCoLo

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  7. What a great way to tackle an affliction! I love that everyone is helping so much too.
    Thanks for linking to #pocolo

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I love hearing your thoughts! Keep them rolling in :)

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