Friday, February 6, 2015

Day 1948 - Fibromyalgia

It's time for an update about the beast within.

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As you know I don't like to talk about my fibromyalgia. I don't like to give it any energy. Because when I give it energy it magnifies in my mind, which then transfers to higher intensity in my body.  But as I sit here at 4.30am unable to sleep because of the discomfort, I feel it's time to chat about it again.

Back in the "good old days" when I was first diagnosed with fibromyalgia the main symptoms for me were fatigue, fog and weird sensations of heaviness, tingling and "zapping" in my arms and legs.

Many MRI's have discounted my theory that it's multiple sclerosis and I was diagnosed with fibromyalgia instead.

Back then I was a little bamboozled because fibromyalgia is largely defined by arthritic like pain.  I didn't have much pain. It was there but it was faint.

It was all the other symptoms that caused me issues.  Like the fibro-fog, incredible fatigue, pins and needles, irritable bowel, irritable bladder, painful periods ... and the list goes on.

Interestingly enough I've got a handle on the fibro-fog ... or perhaps it has a handle on me ... either way it doesn't disable me anymore.

The fatigue is manageable. It's nowhere near as severe as it used to be where I couldn't even lift my arms above my head.  I think staying active through all this has kept the fatigue at bay.

What's happening now is the pain.  The increasing pain. Which is not just affecting my back, neck, shoulders, arms and now my knees, but which sends pain signals right through to my noggin which means I'm getting referred headaches.

Quite frankly it sucks. And being awake at 4.30am due to the pain sucks even more.

So anyway, I have fibromyalgia and it's demanding my attention right now so I figured I may as well make it demand your attention too.

As always, I will not let it get to me.

It is what it is ... and it isn't life threatening ... so I'll just acknowledge it from time to time and then focus on more fabulous things.

Like conquering the world.

Have you heard of fibromyalgia?

Did you know that it affects around 4% of the population? 

9/10 fibromyalgia sufferers are women and it's usually diagnosed in middle age. 

Damn this being deep fried .... 

We'll get back to aging positively tomorrow.


  1. I'd never heard of this until you mentioned it. It just seem wrong that all this stuff comes out as we age....

  2. Massive hugs. I have a couple of ongoing health issues that are causing me grief at the moment. I had 7 minutes sleep the night before last and I'm over it.

    I'm a lot like you and don't really like to give my health issues air or blog time but sometimes things are better out than in.

    Thinking of you.

  3. I haven't heard of that at all. It sounds absolutely dreadful. How many years did you suffer before you were diagnosed? What is the treatment for it? Sending you feel better vibes across the interweb.

  4. I had heard of it but I had no idea there were symptoms other than pain. That sucks. I'm glad you have a handle on the "fog" at least! Are there good treatments available?

  5. This is the first time I've seen a blogger talk about this so I'm holding on to the edge of me seat taking in every word. Several of the people I have seen for my back have been convinced I have fibromyagia. One of my massage therapists told me she was barely touching me yet I was flinching and swearing in pain. The next two massage therapists said it too. I've had chronic pain for 15 years but I'm not sure how to go about getting a diagnosis for this, fibromyalgia? I don't talk about this on my blog either. Just don't know how to approach the fact I live in constant pain every single day. I try not to spend time thinking on it and just live each day. But I see now that it's useful and helpful to talk about it like you have done here. I was a passenger in 4 car accidents in 1999. I've never been the same. I even went to intense back rehab in Canada in 2005. I have spent thousands and thousands on regular treatments. Anyways, I guess I'm saying you got a friend in me, Leanne. It's rare to find someone else who "gets" what living this is. Thank you for sharing your story and feel free to email me if you want to talk more or have any information you could share with me. Thank you. Jess

  6. Sorry to hear about your pain Leanne. I have heard of fibromyagia (is it like Chronic Fatigue syndrome)? Sending you positive energy which will feed off your own positive attitude. Take care.

  7. Oh Leanne, you poor thing. My uncle suffers from fibromyagia - and he had a lot of tests to rule other stuff out. He'd previously had prostate cancer so there were some questions for a while.

    I don't know first hand how bad it is, but I certainly know what he goes through so my thoughts are with you. xxx

  8. I've never heard of Fibromyagia, until now. It sounds awful, no wonder you don't usually like to talk about it. Don't give it head space, and just keep being fit & fabulous! x

  9. Hi everyone! Thanks so much for your comments and thoughts. It does help to talk about it occasionally (but also helps not to dwell on it). If you know anyone with it be sure to let them know I'm happy to chat about it with them. They're not alone. Jess @ Peachy Keen Mumma - I have emailed you. Onwards and upwards!
    Leanne @ Deep Fried Fruit


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